The Ayush Muscular Dystrophy Society
The AMD Society , a Charter of AYUSH Samiti® has been active in the field of authentic Ayurvedic rehabilitation which was first intitiated by Dr Mukesh Jain under expert clinical guidance of Padma Shri Prof M P Pandey in Central Medical Institute, Bhilai in 1995. The Patients are diagnosed by modern methods (Multiplex PCR technique for dystrophin gene analysis, muscle biopsy and immunostaining for dystrophin, NCV). Ayurvedic Panch Karma and Yoga therapists then carry out a family support based rehabilitation program, which increases the duration of the ambulatory stage.
This Ayurvedic approach has been developed wherein patient’s care taker is also actively invloved in the rehabilitative programs at a special clinic in Bhilai. This holistic approach has proven to be more beneficial to the families and is being explored further.
A number of families of afflicted children are registered with AMD society, which is involved in helping families with information about all aspects of NMD including Ayurvedic Treatment, Yogic support, physiotherapy, diet, monitoring the breathing, and updates about what is new in the form treatments that may be in the pipeline. Regular meetings with the families are held to identify their needs like wheelchairs, ankle foot orthosis, spinal braces, cough-assistive devices etc.
Future Plans:-
(i) To become a part of International Research Group for participation in multi-center clinical trials.
(ii) To set up a molecular diagnostics facility in Bhilai.
(iii) To develop new strategies to improve the management of Neuro-Muscular disability.
All this require the formation of a vibrant team involving physiotherapists, dietician, psychologist, molecular biologists, clinical research coordinator, social workers and volunteers apart from the expert Panch Karma doctor specialised in NM Treatment.